Full time, permanent (hybrid/remote options available, organization based in Victoria, BC)

Salary:

$60,000/year

Purpose:

To support the community services and programs of a small rare disease non-profit organization.

Reports to:

Executive Director

Position Overview

: The Community Engagement Coordinator plays a vital role in connecting our organization with patients, caregivers, healthcare professionals, and advocacy partners across Canada. Reporting directly to the Executive Director

, you will serve as the primary bridge between our community and our programs. As part of a nimble small team

, this role requires an adaptable, empathetic self-starter who thrives in a collaborative, cross-functional environment and is passionate about elevating the patient voice.

ImmUnity Canada is a national charity providing support, education and advocacy to patients and families whose lives are affected by Primary Immunodeficiency (PI). Primary Immunodeficiency diseases are a genetic group of over 400 rare blood diseases that cause the immune system to be defective. Some travel within Canada will be required for this role.

Key Responsibilities:

1. Patient & Community Relations

- Liaise with Patients & Caregivers: Serve as an approachable point of contact for individuals seeking resources, navigating care paths, or looking to share their stories.

- Support Group Facilitation: Coordinate, host, and facilitate virtual or in-person peer support networks and patient education workshops.

- Stakeholder Collaboration: Maintain and strengthen strategic relationships with regional healthcare providers, partner charities, and medical advisory committees across Canada.

2. Advocacy & Awareness Campaigns

- Mobilize Grassroots Advocacy: Engage community members to participate in letter-writing, health policy campaigns, and provincial/federal awareness initiatives.

- Resource Development: Assist the ED and program staff in creating, updating, and distributing patient-facing resources, toolkits, and blog content.

- Event Coordination:



Lead the planning and logistics for national awareness weeks, patient forums, and small-scale community fundraisers.

3. Digital Communications & Outreach

- Social Media & Newsletters: Manage the organization’s community-facing channels (e.g., e-newsletters, Facebook groups, Instagram) to keep stakeholders informed and interactive.

- Storytelling: Conduct interviews and draft compelling profiles of patient experiences to highlight systemic health gaps and humanize our advocacy goals.

4. Database & Team Support

- CRM Management: Maintain clean data entries for the patient/donor database, tracking engagement metrics and community feedback.

- All-Hands Team Support: Collaborate actively with the other staff members on organizational priorities, grant reporting data, and operational needs as directed by the ED.

Qualifications & Competencies

- Education: Post-secondary education in Health Sciences, Communications, Social Work, Public Relations, or a related field.

- Experience: 2+ years of experience working in a Canadian non-profit, community health sector, or patient support capacity.

- Personal Skills: Outstanding active listening and interpersonal skills, with the capacity to support individuals navigating complex or sensitive health journeys.

- Communication: Exceptional written and verbal communication skills; ability to translate complex medical or policy concepts into plain, accessible language.

- Tech Knowledgeable: Proficiency with basic computer platforms (G Suite, Microsoft Office), email marketing (e.g., Constant Contact, Mailchimp), and virtual meeting tools (e.g., Zoom, Teams, Slack).

- Bilingualism: Proficiency in both English and French is considered a highly desirable asset for national reach.

To apply, please send your current resume and cover letter to [email protected] by Tuesday December 1, 2026. ImmUnity Canada is an equal opportunity employer. We seek a broad and diverse pool of candidates and strongly believe that our organization benefits from the perspectives and talents of a diverse staff.

📌 Community Engagement Co-ordinator (Victoria)
🏢 ImmUnity Canada
📍 Victoria