Healthcare Fundraising Consultant. Barth syndrome, an ultra-rare disease affecting approximately 350 known individuals globally. We aim to raise funds to support scientific research, advance treatments and a cure, provide resources to affected families, and strengthen the global Barth syndrome community.

CA$70,000.00–CA$90,000.00 yearly

Full-time

We are seeking an experienced Healthcare Fundraising Consultant to develop and execute a diversified fundraising program dedicated to improving the lives of individuals and families affected by Barth syndrome, an ultra-rare disease affecting approximately 350 known individuals globally.

We aim to raise funds to support scientific research, advance treatments and a cure, provide resources to affected families, and strengthen the global Barth syndrome community.

The role combines strategic planning with hands‑on execution across individual, corporate, institutional, government, and digital fundraising channels.

Responsibilities

- Demonstrated fundraising experience within nonprofits, rare diseases, healthcare, medical research, patient advocacy, or other mission‑driven organizations.
- Proven success securing funding from individuals, major donors, corporations, foundations, grantmakers, or government bodies.
- Experience managing crowdfunding, peer‑to‑peer,



or digital fundraising campaigns through GoFundMe or similar platforms.
- Robust skills in grant research, proposal writing, donor communications, relationship management, and presentations.
- Ability to translate complex medical or scientific information into clear, credible, and compelling donor messaging.
- Resourceful and entrepreneurial approach to building support for a specialized cause with a small global patient population.

Requirements

- Develop and execute a diversified fundraising strategy across individual giving, major gifts, corporate partnerships, grants, sponsorships, and crowdfunding.
- Identify, cultivate, and engage prospective donors, foundations, corporations, government funding bodies, and strategic partners.
- Create fundraising narratives, cases for support, proposals, presentations, sponsorship packages, and donor communications.
- Plan and manage digital fundraising campaigns through GoFundMe or similar fundraising platforms, email, social media, and other online channels.
- Build donor stewardship programs that strengthen relationships, encourage recurring giving, and improve retention.
- Establish fundraising targets, timelines, budgets, reporting processes, and performance metrics.

📌 Sales Consultant – Agricultural Trailer Division (Winnipeg)
🏢 Norstar Industries
📍 Winnipeg