We are seeking an experienced Healthcare Fundraising Consultant to develop and execute a diversified fundraising program dedicated to improving the lives of individuals and families affected by Barth syndrome, an ultra-rare disease affecting approximately 350 known individuals globally. We aim to raise funds to support scientific research, advance treatments and a cure, provide resources to affected families, and strengthen the global Barth syndrome community. The role combines strategic planning with hands-on execution across individual, corporate, institutional, government, and digital fundraising channels.

Responsibilities

- Demonstrated fundraising experience within nonprofits, rare diseases, healthcare, medical research, patient advocacy, or other mission-driven organizations.




- Proven success securing funding from individuals, major donors, corporations, foundations, grantmakers, or government bodies.
- Experience managing crowdfunding, peer-to-peer, or digital fundraising campaigns through GoFundMe or similar platforms.
- Robust skills in grant research, proposal writing, donor communications, relationship management, and presentations.
- Ability to translate complex medical or scientific information into clear, credible, and compelling donor messaging.
- Resourceful and entrepreneurial approach to building support for a specialized cause with a small global patient population.

📌 Healthcare Fundraising Consultant (Toronto)
🏢 Doist
📍 Toronto